Once upon a time, I used to write. Constantly. Writing was my thing. In fact, before this !@^*%@! pandemic started, I was gearing up to contribute to a book of essays as well as start on my own. I was also planning on spending a couple weeks in Prague to visit some old haunts andContinue Reading
Writing
Thirteen
My son! turned thirteen! yesterday! The meaning is arbitrary, really, but all the same, it has significance. Throughout my life, even long before my son, I’ve been infamous for my non-traditional ways. I’ve questioned (and continue to question) everything, and I’ve never been able to do things that simply don’t make sense or that don’tContinue Reading
Seattle: South Lake Union
We don’t actually head over to the South Lake Union area often, but it’s one of my favorite areas of Seattle. We drove over last night, to enjoy a lovely Summer evening after last week’s heatwave broke, and it left me thinking, “Why don’t we spend more time over here?” I use a very lightContinue Reading
dysautonomia / POTS + electrolytes
I’ve begun the process of a proper Ehlers Danlos diagnosis with a specialist here in the Seattle/East Side area, and as part of that process, they also ask questions/diagnose for issues commonly paired with Eds, Pots and Mast Cell Activation Syndrome. Once I’d begun reading up on POTS (postural orthostatic tachycardia syndrome), I absolutely knewContinue Reading
but I don’t look autistic, right?
If you spend any time within autistic circles, or looking at autistic’s Instagram accounts, you’ll know that “you don’t look autistic,” is one of those vehemently despised sentences that people say to autistics frequently. It’s a beast of a thing to hear. There are two reasons this is a crappy thing to say: One, itContinue Reading
POTS and Dysautonomia
Notes: Dysautonomia is a disorder of the central nervous system. That means issues with regulating heart rate, temperature, blood pressure, etc.POTS = Postural orthostatic tachycardia syndrome and is a form of dysautonomia. The most simplified explanation is that it’s triggered when you stand up after sitting or laying down. (For example, I often have toContinue Reading
Hypermobile Ehlers Danlos (hEds)
Ok, so. Ehlers Danlos! As I mentioned in a previous post, this particular disorder was on my radar thanks to the many autistics that I follow on social media—many autistics have Eds. I am IMMENSELY grateful that the people I follow have talked about it so much, so that I was able to recognize itContinue Reading
bendy wendy
So I have this new parlor trick! It’s come up a couple of times in the last week where I’ve mentioned having hypermobile Ehlers Danlos (hEds); when I say this, I hold my hands together as if in prayer, and then pop my elbows up and out so that only my fingers are still pressedContinue Reading
color play
Logo decided! My initials (nh). Font: Audiowide